Transthyretin cardiac amyloidosis (ATTR-CM) support groups
These organizations can provide you with more information, connect you with support groups, and let you hear from other people with the condition*:
The Amyloidosis Support Groups provide information about ongoing ATTR-CM support and work to educate on and raise awareness of amyloidosis for all those affected by the disease.
The Amyloidosis Research Consortium (ARC) offers comprehensive support and information for those living with amyloidosis throughout their journey. ARC aims to promote the development of and access to new and innovative treatments, and foster the research that will have the greatest impact on people living with the disease.
The Amyloidosis Foundation works to drive research for an earlier diagnosis. The foundation also serves to educate medical professionals and assist patients through a broad range of services.
*These websites are neither owned nor controlled by Pfizer. Pfizer does not endorse and is not responsible for the content or services of these sites.
If you’ve been diagnosed with hereditary ATTR-CM, your loved ones may also be at risk.
It’s important for patients with hereditary ATTR-CM to tell their families about their condition. This allows family members to make a decision as to whether they want to pursue genetic testing and counseling.
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